El dedo en la llaga: hay más Nayras

Y, de repente, resulta que ya ha acabado Halloween y llega la campaña de navidad. Eso significa que el año encara su recta final y toca hacer balance de lo que hemos vivido. 2015 ha sido un año muy productivo a nivel solidario, hemos visto la movilización de muchas personas a la hora de echar una mano a gente que realmente lo necesitaba, incluso nuestro nuevo gobierno autonómico se ha tomado muy en serio el asunto de los refugiados sirios (¿quizá demasiado?) y mucha gente lo ha valorado positivamente. También hay quien no. Cada uno está en su derecho de opinar de la forma que crea correcta.

Pero si hay un fenómeno solidario que ha destacado por encima del resto, es el de la pequeña Nayra. Quien no haya oído hablar, aunque solo fuera de pasada, de la campaña “Un latido para Nayra”, seguramente vive en una realidad paralela. La verdad es que es la ciudad y la poblaciones cercanas se volcaron con la causa y se vivió un auténtico fenómeno solidario sin precedentes. Así es como medios de comunicación, asociaciones, particulares, clubes deportivos y demás grupos de personas se pusieron manos a la obra para ayudar a la familia de la pequeña. Y se cumplió con el objetivo.

unlatidoparanayra.org

La familia de Nayra consiguió reunir el dinero necesario para poder costear el precio de la operación más la estancia en Estados Unidos. Y por lo que hemos podido saber, Nayra ya va al cole y hace vida completamente normal. No se podría haber recibido una noticia mejor.

Pero, ¿qué pasa con l@s otr@s Nayras? Porque, lamentablemente, este caso no es el único que podemos encontrarnos en nuestro día a día, son muchas las familias que necesitan de la ayuda de los demás para poder recaudar dinero para llevar a cabo tratamientos que no financia la Seguridad Social (que éste ya es un tema a parte), y parece que nos hemos olvidado de ellas.

Desde que comenzamos con el proyecto Valencia Culture, cuatro son las familias que han recurrido a nosotros para ayudarles en la difusión de la enfermedad de sus hijos, además de la Asociación Síndrome Phelan-Mc Dermid, que nos pidió la difusión de su torneo de pádel solidario, y nosotros hemos colaborado en la medida de nuestras posibilidades. Pero no vemos estas causas en las redes sociales, no vemos que lleguen a tener un boom mediático que movilice a la ciudadanía, no vemos grupos de personas hacer colectas para ayudar a estas familias, no vemos a miembros de esta asociaciones en los medios de comunicación. ¿Por qué? ¿Por qué nos volcamos con unos y damos la espalda a otros?

Hace unas semanas estuvimos en la entrega de premios del Certamen Nacional de Relatos de la Falla Santiago Russinyol. Allí pudimos conocer a la madre de Alex, niño que lucha todos los días por salir adelante con su dura enfermedad. La enfermedad de Alex no tiene cura, aunque al menos se le puede dar calidad de vida. Pero su familia no tiene medios económicos para afrontar el tratamiento. ¿Conocíais este caso? ¿Dónde está la difusión de esta causa? Aquí os dejamos el artículo ‘Todos con Alex!!!‘ para que podáis conocer mejor esta historia.

levante-emv.com

O podemos hablar de Lucía, niña que sufre Distrofia Simpático-Refleja y necesita una máquina para aliviar el dolor que sufre por todo el cuerpo. Una máquina que tampoco financia la Seguridad Social. El pasado fin de semana publicamos el cartel de la mesa que ponían en Heron City Paterna el pasado sábado para recoger fondos. Se compartió UNA VEZ, y fue un amigo mío.

Y ya si queréis hablamos de la campaña “Burbujas para Héctor“. No sabéis la de noches que he estado hablando con Javier Bastán por Whatsapp o por Facebook. Javier Bastán es el padre de Héctor, y está totalmente desesperado por no encontrar una solución a la enfermedad de su hijo. Sin conocernos personalmente, compartimos muchas noches de charla. Y duele mucho ver a alguien que lo está pasando mal fruto de la impotencia de ver como tiene un hijo enfermo y no puede hacer nada.

Amig@s, la solidaridad no acaba en Nayra. Y no es una cuestión de dinero, sabemos cual es la situación actual en muchos hogares españoles. Con compartir una imagen muchas veces se hace más que dando una cantidad económica. Porque tenemos que evitar que todos estos niños caigan en el olvido. Porque evitarlo está en nuestras manos.

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